Useful spina bifida and hydrocephalus links, including international and state organisations, resources and other sites of interest.

Australian association sites

• Spina Bifida Foundation of Victoria
• SBH Queensland
• Spina Bifida and Hydrocephalus Association of South Australia
• Spina Bifida Association of Western Australia
  

General Australian sites

• Continence Foundation of Australia
• Australian Council of Stoma Associations
• Monash Medical Centre
• Betterhealth Channel
  A quality-assured, regularly reviewed, health and wellbeing information and services established by the Victorian Government.
  

International sites

• International Federation for Hydrocephalus and Spina Bifida
• Spina Bifida Association of America includes links to all US spina bifida chapters
• Association for Spina Bifida and Hydrocephalus ASBAH (UK)
• Spina Bifida and Hydrocephalus Association of Canada
• Spina Bifida Association of Ontario
• Association Spinabifida et Handicaps Associes (France)
• Fédération Française des Associations du Spina Bifida (France)
• The Polish Association for Spina Bifida and Hydrocephalus (ASBP)
• Arbeitsgemeinschaft Spina Bifida und Hydrocephalus (Germany)
• The BOSK association (The Netherlands)
• The Danish Spina Bifida and Hydrocephalus Association
• Spina Bifida Association of Turkey
• The Finnish CP association
• Federazione Associazioni Italiane Spina Bifida e Idrocefalo (Italy)
• Genitori Associati Spina Bifida Italia (Italy)
• The Norwegian association for Spina Bifida and Hydrocephalus
• Swiss Federation of Spina Bifida and Hydrocephalus
• Indian Spina Bifida Association

Hydrocephalus

• Hydrocephalus Association
• The Hydrocephalus Foundation

Other sites related to spina bifida

• Continence management and spina bifida
• Arnold Chiari Malformation
• Welcoming Babies with Spina Bifida great support for new and expectant parents
• Latex allergy
• Foetal surgery
• Continence Worldwide
• The Continence Foundation [UK]
• International Foundation for Functional Gastrointestinal Disorders
• Healthfinder
  Healthfinder is a free gateway to reliable consumer health and human services information developed by the US Department of Health and Human Services.

Use the Google search engine to find more information on spina bifida and hydrocephalus.

Suggested search words:

spina bifida, hydrocephalus, continence, children with disabilities, shunts, folate,

Discussion boards and chat sites

International forum
Ask questions and share experiences with the international spina bifida and hydrocephalus community

SB-Parents
List for parents/family/caregivers/friends of people with spina bifida, or people with SB, to join to discuss issues, support, and other relevant issues.

SBMoms-N-Dads
This list is for parents and carers of children with spina bifida.

SB-Learning
This list is for parents, care givers, relatives or educators of children with spina bifida and hydrocephalus who want to become familiar with the educational process. Discussions are about the neurological issues children have and the impact these issues have on learning. This is a restricted list.

SB-Teens
A list for teens with spina bifida to meet on-line and exchange ideas, stories or just chat. Content does not have to relate to spina bifida; though list members should have spina bifida. Siblings of teenagers with spina Bifida are also welcome. For more information see our website at http://_sb_teens.homestead.com

Adults Central for Spina Bifida
For adults with spina bifida to ask questions, help others with information and meet people for friendship.

Adults with Spina Bifida
A place for adults with spina bifida to talk about spina bifida and more.

Spina Bifida Central
A support group for spina bifida where people can have a good time chatting and making friends.

Find something interesting? - send us your new link or spina bifida resource.

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